XXYTalk.com
International Support Forums for Klinefelter Syndrome
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Never replace the advice of a qualified medical professional with anything you read in our forums.
Current Quote
"The only way to measure whether testosterone should be higher or lower is by trial and error. The best way to tell if your body needs more or less is by % Free Testosterone. If the "% Free" is low, and LH (Luteinizing Hormone) is high, then you need more testosterone. If LH is low, you don't need more.

Pretty simple. The only complication is FSH, because it indicates tumors, but for interpreting that you really do need a competent doctor."
~ Onnineko
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Lift that Fig Leaf!
Posted on: 02-07-10 07:58 AM     Posted by: Paul
Poster for the UK KS Awareness Campaign 2010.

Welcome
Posted on: 07-01-09 03:54 AM     Posted by: Paul
Welcome to XXYTalk!

We are a family of the X: XXY persons, their partners, parents of XXYs and mothers-to-be. Guests who are curious about XXY are also welcome.

Please take a moment and fill out your profile (under My XXYTalk, upper left). If you have a confirmed XXY diagnosis note it in your bio. No matter what you write about yourself in the profile, you are as anonymous as you want to be. So don't be shy.

The board is divided into topical forums and there is an appropriate section for whatever your interest is.

XXY persons with confirmed diagnosis: after you have filled out your profile, please take a moment to answer a survey titled "XXYs only - what do you do for a living?" - this is our XXY wall of pride and we would be pleased to have a contribution from every XXY person.

Mothers-to-be: if you are struggling with a decision whether to continue your pregnancy, please give us a chance to tell you what we know about XXY. Our information comes of research and first hand experience, and may be quite different from what a doctor or geneticist has told you.

If you are a person who suspects he is XXY but hasn't been to a doctor about it, post about yourself in the forum titled "Am I XXY?" Do note that we are not doctors, we cannot diagnose or give medical advice, please don't expect us to.
The only way to confirm if you have the condition is to get the genetic test done.

Everyone, have a look at this post - it is about newly published information on XXY that you and your doctor may not be aware of.

If you haven't used a bulletin board system before this will be a new experience. There are lots of tips and tricks under the "Information" forums. And don't hesitate to ask for help.

And finally, we're curious to know how you found us. Could you send Paul a Private Topic message and let him know?

Again, welcome to the board!

the moderators

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Current Quote
"The only way to measure whether testosterone should be higher or lower is by trial and error. The best way to tell if your body needs more or less is by % Free Testosterone. If the "% Free" is low, and LH (Luteinizing Hormone) is high, then you need more testosterone. If LH is low, you don't need more.

Pretty simple. The only complication is FSH, because it indicates tumors, but for interpreting that you really do need a competent doctor."
~ Onnineko
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