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International Support Forums for 47XXY, including Klinefelter Syndrome & variants

Current Quote
"Harry Fitch Klinefelter was born March 20, 1912 (now deceased) and was the physician for which Klinefelter Syndrome was named. We at XXYTalk.com shall observe Klinefelter Syndrome Awareness Week each and every year starting in 2007 on March 18th. We encourage the world to join with us in helping to establish the week that includes March 20th as a week of awareness of Klinefelter Syndrome, XXY, and the Variants."
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xxy Awareness Week 2017
Posted on: 03-05-17 12:38 PM     Posted by: Paul

The week containing 20th March (this year it's 20th to 26th March) is always xxy or KS Awareness Week on this site.

This is because Harry Klinefelter who first reported on the condition that came to be called Klinefelter's Syndrome was born on 20th March.

Unfortunately Harry only had his observations; he didn't know that the cause of source of what he saw was the presence of one or more additional X chromosomes, nor was he aware that some with the condition would consider the Y chromosome to be the 'addition'(those xxy's who don't identify as male).

If I mull this over, I might think that we should also honour the birthday of Pat Jacobs who actually discovered the chromosome connection. Her birthday is 8th October. Pat is a member of KSA UK and someone I've had the pleasure of meeting.

What is this week for? Well to help us publicise this condition so that doctors and the general public understand us and our needs better.

This is the week to put our leaflets into doctors surgeries, to wear our Xxy t-shirts in public, to be a little braver in social media and express our pride in being Xxy. If nothing else to wear the Xxy flag on our profiles.

For those in the UK this could be the week you book your place at the KSA Conference in Derby which takes place 2nd-3rd June 2017.

Regards

Paul

Welcome
Posted on: 07-01-09 04:54 AM     Posted by: Paul

Welcome to XXYTalk!

This is an International Support Forum for 47xxy, Klinefelter's Syndrome and associated conditions.

We are a family of the X: XXY persons, their partners, parents of XXYs and mothers-to-be. Guests who are curious about XXY are also welcome.

Please take a moment and fill out your profile (under My XXYTalk, upper left). If you have a confirmed XXY diagnosis note it in your bio. No matter what you write about yourself in the profile, you are as anonymous as you want to be. So don't be shy.

The board is divided into topical forums and there is an appropriate section for whatever your interest is.

People may read your profile but they may not write to you about it. Please use the Forums to engage people in conversation.

XXY persons with confirmed diagnosis: after you have filled out your profile, please take a moment to answer a survey titled "XXYs only - what do you do for a living?" - this is our XXY wall of pride and we would be pleased to have a contribution from every XXY person.

Mothers-to-be: if you are struggling with a decision whether to continue your pregnancy, please give us a chance to tell you what we know about XXY. Our information comes of research and first hand experience, and may be quite different from what a doctor or geneticist has told you.

If you are a person who suspects they are XXY but hasn't been to a doctor about it, post about yourself in the forum titled "Am I XXY?" Do note that we are not doctors, we cannot diagnose or give medical advice, please don't expect us to.

The only way to confirm if you have the condition is to get the genetic test done.

If you haven't used a bulletin board system before this will be a new experience. There are lots of tips and tricks under the "Information" forums. And don't hesitate to ask for help.

We curious to know how you found us. Could you send Paul a Private Topic message and let him know?

Remember that you must be 16 years of age to register at this forum as a member, that you should not replace medical advice with anything you read at this forum and that as an offshoot of a UK Charity we do not discriminate against any minority as specified in the UK Equality Act of 2010.

This site is an offshoot of a UK Charity which funds the web hosting etc. more details can be found at www.ksa-uk.net

Again, welcome to the board!

the moderators

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Current Quote
"Harry Fitch Klinefelter was born March 20, 1912 (now deceased) and was the physician for which Klinefelter Syndrome was named. We at XXYTalk.com shall observe Klinefelter Syndrome Awareness Week each and every year starting in 2007 on March 18th. We encourage the world to join with us in helping to establish the week that includes March 20th as a week of awareness of Klinefelter Syndrome, XXY, and the Variants."
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