karstenblok
Active Member
Loc: Texas
Reg: 05-27-08
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 07-02-08 01:00 PM - Post#46755
I am very happy to announce a successful first Support Group Meeting last night!
Please know that you and your family are not alone. Many families are affected by 47, XXY / Klinefelter’s Syndrome and we are all here to help each other work through the challenges as well as share ideas and success stories.
Please contact us if you are interested in meeting others in your situation, share your experiences and hear how others deal with Klinefelter’s Syndrome.
We (Sabrina and Karsten Blok) can be reached online at:
www.Klinefelters.org
via email: info@klinefelters.org
or via phone: 512-642-6178
Edited by karstenblok on 07-02-08 01:00 PM. Reason for edit: No reason given.
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Bugs Bunny
Active Member
Reg: 01-03-06
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07-02-08 07:55 PM - Post#46760
In response to karstenblok
Thank you Karsten. Good website and wishing you all the best for your son and the Texas support group. 
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karstenblok
Active Member
Loc: Texas
Reg: 05-27-08
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 07-03-08 01:04 PM - Post#46766
In response to Bugs Bunny
Thanks Rick!!
We are very excited about the interest we've seen so far!!
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Panda-chan
Active Member
Loc: Dallas, Texas
Reg: 06-17-10
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12-03-10 11:41 AM - Post#66073
In response to karstenblok
hey kids 6 1/2 now huh, what've y'all been up to?
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Ron St. Aubyn
Active Member
Loc: Louisiana, USA
Reg: 12-04-06
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12-10-10 07:04 PM - Post#66155
In response to karstenblok
Yes, it's been more than two years since this last posting. It would be helpful to know how your organization has done so far.
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Daniel P
Active Member
Loc: Texas
Reg: 01-01-07
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12-31-10 05:16 PM - Post#66426
In response to Ron St. Aubyn
I'm a member with Karsten's group. He has monthly teleconferencing (by phone) with members. I've been there only once, so far. He sends out notices via Facebook a month, then 2 weeks, then a 1 week reminder there's a phone meeting coming and the date, time, how-to make contact (next meeting is January 12, I think). He keeps everyone up to date on what he & his family are doing socially (Walkathons, fund raising, etc). I 'met' him on Facebook through his family pictures. One of these days, I'll run into him since we are about 30 miles apart.
| Either hammer it down or be the hammer! |
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karstenblok
Active Member
Loc: Texas
Reg: 05-27-08
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01-03-11 01:27 PM - Post#66483
In response to Ron St. Aubyn
Please join our group to receive updates, newsletters, invites to conference calls, etc.
You can join by going to www.klinefelters.org and click Contact Us, complete the form and I will add you to our members list.
Daniel P is correct. Our next call is 1/12/11 at 7:30pm CST
I hope to "see" you there!
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Marcus
Active Member
Loc: Lubbock, Texas, USA
Reg: 01-19-08
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01-06-11 07:26 PM - Post#66596
In response to karstenblok
Only as an information about the south Plains Area.
Covenant, one of the biggest Medical Units here, might get there own Endo, because I told them about KS.
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