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Username Post: KS Support Group Texas        (Topic#4544)
karstenblok 
Active Member
karstenblok
Loc: Texas
Reg: 05-27-08

07-02-08 01:00 PM - Post#46755    

I am very happy to announce a successful first Support Group Meeting last night!

Please know that you and your family are not alone. Many families are affected by 47, XXY / Klinefelter’s Syndrome and we are all here to help each other work through the challenges as well as share ideas and success stories.
Please contact us if you are interested in meeting others in your situation, share your experiences and hear how others deal with Klinefelter’s Syndrome.

We (Sabrina and Karsten Blok) can be reached online at:

www.Klinefelters.org
via email: info@klinefelters.org
or via phone: 512-642-6178
Karsten Blok
Father of a wonderful KS son
Founder of KS Global Support Group
Website: www.klinefelters.org


Edited by karstenblok on 07-02-08 01:00 PM. Reason for edit: No reason given.

 
Richard 
Active Member

Loc: CA
Reg: 01-03-06

07-02-08 07:55 PM - Post#46760    
    In response to karstenblok

Thank you Karsten. Good website and wishing you all the best for your son and the Texas support group.
47XXY married, 1 dog!

Klinefelter 47 XXY Syndrome Support: www.ksa-uk.net
XXYTalk Online Store: www.xxyuniversity.com


 
karstenblok 
Active Member
karstenblok
Loc: Texas
Reg: 05-27-08

07-03-08 01:04 PM - Post#46766    
    In response to Richard

Thanks Rick!!

We are very excited about the interest we've seen so far!!
Karsten Blok
Father of a wonderful KS son
Founder of KS Global Support Group
Website: www.klinefelters.org


 
Panda-chan 
Active Member

Loc: Dallas, Texas
Reg: 06-17-10

12-03-10 11:41 AM - Post#66073    
    In response to karstenblok

hey kids 6 1/2 now huh, what've y'all been up to?


 
Ron St. Aubyn 
Active Member
Ron St. Aubyn
Loc: Louisiana, USA
Reg: 12-04-06

12-10-10 07:04 PM - Post#66155    
    In response to karstenblok

Yes, it's been more than two years since this last posting. It would be helpful to know how your organization has done so far.

 
Daniel P 
Active Member
Daniel P
Loc: Texas
Reg: 01-01-07

12-31-10 05:16 PM - Post#66426    
    In response to Ron St. Aubyn

I'm a member with Karsten's group. He has monthly teleconferencing (by phone) with members. I've been there only once, so far. He sends out notices via Facebook a month, then 2 weeks, then a 1 week reminder there's a phone meeting coming and the date, time, how-to make contact (next meeting is January 12, I think). He keeps everyone up to date on what he & his family are doing socially (Walkathons, fund raising, etc). I 'met' him on Facebook through his family pictures. One of these days, I'll run into him since we are about 30 miles apart.
Either hammer it down or be the hammer!


 
karstenblok 
Active Member
karstenblok
Loc: Texas
Reg: 05-27-08

01-03-11 01:27 PM - Post#66483    
    In response to Ron St. Aubyn

Please join our group to receive updates, newsletters, invites to conference calls, etc.

You can join by going to www.klinefelters.org and click Contact Us, complete the form and I will add you to our members list.

Daniel P is correct. Our next call is 1/12/11 at 7:30pm CST

I hope to "see" you there!

Karsten Blok
Father of a wonderful KS son
Founder of KS Global Support Group
Website: www.klinefelters.org


 
Marcus 
Active Member
Marcus
Loc: Lubbock, Texas, USA
Reg: 01-19-08

01-06-11 07:26 PM - Post#66596    
    In response to karstenblok

Only as an information about the south Plains Area.
Covenant, one of the biggest Medical Units here, might get there own Endo, because I told them about KS.
South Plains Texas


 
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